Le Syndrome du spaghetti
(d’après Marie Vareille) au profit de la recherche dédiée au syndrome de Marfan
Originally staged in Avignon this summer, the theatrical adaptation of the novel Le Syndrome du spaghetti by author Marie Vareille, which has more than a million readers worldwide, is being oerformed for the first time in Belgium for two special performances to raise funds for research on Marfan syndrome, at the invitation of 101 Genomes and the Belgian Marfan Syndrome Association (ABSM).
Between the two performances, author Marie Vareille will be present for a book signing session from 5:30 p.m. to 7:30 p.m.
The scientists supporting the 101 Genomes initiative will also be present to share updates on their research.
Summary
Her name is Léa.
She is 16 years old, immensely talented and has a dream to fulfil: to join the WNBA, the American women's basketball league. Coached by her father, who is both her role model and confidant, she moves confidently towards this mapped-out future. Until the day when a family event changes everything...
Le Syndrome du spaghetti explores the complexities of adolescence and the power of resilience.
Léa transforms her pain into energy and her fall into a zest for life. Her path crosses that of Anthony, who has long since given up on his dreams. Their encounter redraws their paths.
This show is an adaptation of Marie Vareille's novel, performed by Marion Zaboïtzeff and directed by Henri Botte.
Marie Vareille's novel
Le Syndrome du spaghetti is Marie Vareille's eighth novel. Winner of the 2021 Babélio Prize, selected for the 2022-2023 Prix des Incorruptibles and the 2024 Grand Prix des lecteurs, it is published by Pocket Jeunesse and has captivated thousands of readers around the world.
Why "Le Syndrome du spaghetti"?
"Life is what happens to you while you're busy making other plans." - John Lennon
The story of Léa, imagined by Marie Vareille, draws on the lives of many people (including the author herself) whose worlds fall apart, but who discover within themselves an unexpected strength and resilience that enables them to find their way back to life.
Both deeply personal and utterly universal, this story allows us to appreciate the scale of the fight led by 101 Genomes and the ABSM, and helps us understand that people with rare diseases are much more than their diagnosis, and that their experiences can guide us all.
101 Genomes and the ABSM
Spaghetti Syndrome is brought to you by 101 Genomes and the Belgian Marfan Syndrome Association (ABSM).
- 101 Genomes Foundation, Genomics for Rare Diseases (https://f101g.org/): Together with the King Baudouin Foundation, 101 Genomes facilitates genome exploration to better understand and treat rare diseases. Your support is essential: https://donate.kbs-frb.be/Fonds101Genomes/~mon-don.
- The Belgian Marfan Syndrome Association (ABSM) (https://www.marfan.be/): For more than 25 years, the ABSM has been supporting people with Marfan syndrome and promoting medical research in Belgium. Help the ABSM go further: https://www.marfan.be/soutien/.
